Advocacy
Features / 01
Skincare
Over 80% of Persons-with-Albinism contract Skin Cancer. And primarily due to weak health access pathways, including poor financing – less than 10% of Persons-with-Albinism can self-finance with respect to medicinal SkinCare products. There should be concreted efforts around pressuring government to provide universal sunscreens support
Features / 02
Education
At the centre of educational equity, as it relates to Persons-with-Albinism, are least restrictive learning environments. And for Students-with-Albinism, this entails a systematic overhaul – from empowering classroom designs, inclusive policies, and adapted textbook and exam models.
Features / 03
Healthcare
Over 98% of Persons-with-Albinism die before reaching the age of 40 years – this is a compounded complex – lack of access to economic opportunities, restricting cultural norms and value systems, weak family-level support systems and an archaic public health architecture.
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